IPH Health 29th January 2018

I am writing this on 29 January 2018 after returning home from the hospital.

Background

This page gives my experience of the test requested on 19th December 2017, when the two consultant doctors said they need to do investigations for myasthenia gravis.

How it went on the day

On 29 January 2018 I drove again to Frimley Park Hospital (where Prime Minister Theresa May had visited on 5th January 2018 and talked about the NHS crisis) to have electromyography investigation of my muscles.

As usual at that hospital, I had to go along many corridors and round corners after I went upstairs to the department where I was to undergo EMG, a nerve conduction study.

The doctor had me sit down on a bed with my legs out straight. I had to remove shoes and socks, roll up trouser legs and sleeves, and then he first put electrodes on fingers and other places and gave small brief electric shocks. He next stuck a needle that was on the end of a wire to his instrument into my arms and legs at various points and asked me to tense a relevant muscle while he recorded electric signals from the needle in his system. The system played the signals as sounds, which were like crackling, the noise of a badly tuned old radio.

At the end as I put clothes back in normal arrangement to go home I asked him when results would be available. He said the requesting doctors would have them in a week. I asked about what he knew of my case; he had not been given details. I said they had hypothesized myasthenia gravis, and that had led to this EMG testing. He said that what I had was unclear, but it was not myasthenia gravis.

I asked whether it might instead by chronic fatigue syndrome (CFS, also referred to as myalgic encephalomyelitis/ME); he said that it was also not CFS. So the mystery continues, or indeed deepens.

Next page: Update 5th April 2018